ENTRY DESCRIPTION
This is a photo project on a serious rare disease that affects children; currently in Italy only 10 cases were diagnosed and even the doctors don't know this syndrom as well. So the families of these children are obliged to understand, test and treat the syntoms almost by themselves. Trisomy 9 Mosaic is a rare chromosomal disorder for which the chromosome 9 appears 3 times (trisomy) rather than 2. The term 'mosaic' indicates that the chromosome is not present in all the cells but only in some of them. Associated symptoms and results may change substantially according to the percentage of cells with the extra chromosome. However, the common features include slow growth before birth, mental retardation, heart structural malformations and distinctive features of the skull and face like a sloping forehead, and malformed ears.
Individuals with trisomy 9 mosaicism can vary very much one from another.

He is Federico: six years old, blind. He speaks trough his body language, just like a dancer.

AUTHOR
I'm an Italian photojournalist interested in social issues. In 2014 I photographed the "UNESCO World Forum for Culture and Cultural Industries", the "Stati Generali della Lingua Italiana nel Mondo" and "Festival delle Religioni" (as in the following years). I curated photoshoots for exhibitions dedicated to Salvador Dalì, Antony Gormley, Jeff Koons, Pontormo, Bronzino, Jan Fabre and John Currin. Since 2016 he follows and documents the work of a group of nurses. Some of my photojournalistic reportages were published in magazines as LensCulture, Social Documentary Network and Witness Journal. I'm also member of some important photographic associations such as Wedding Photojournalist Association, Wedding Photography Select, Fearless Photographers, Best of Wedding Photography and Wedding Photography Select.

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